Tuesday, August 09, 2005

Well not so great day in the life of a preemie and her parents. Hailey was transported to the "Mount" today to feed and grow. The day started out great, her transfusion went well last night - her weight is up to 3lbs, 13 oz - she only had one desat the entire night and she greeted us this morning with eyes wide open! It seems though ever since she was transported to the "Mount" she went downhill quick. She hasn't been keeping her temperature up, they missed a dose of her meds, and she has been having many bradys, apneas and desats. I have never seen her have this many since she has been alive! Also, in the NICU if she would have an episode where her heartrate would drop or she would decide to stop breathing you would just stimulate her and she would pick back up, this time they have had to bag her and pump oxygen in her to make her breath again. Never has this happened! Tim and I also are not very fond of the new facilites, but we are trying to give it time because for four weeks we have been accustomed to one way of life and now it is all different so the dislike may be just because we are out of our comfort zone and we need to expand our horizon to bring her home. I hope that is it and I hope, as they keep telling me, that her problems today are because of the transport and she will stabilize. Please pray for her and pray for us because this has taken a toll on us! It is also really hard not to have family down here, especially on days like today! I am also having some rough waters with short term disability paying for my maternity leave and being able to start it when she comes home instead of using it now. Well, I know whom I have believed in and I am persuaded that He is able to keep that which I have committed into His hands! I know I will look back one day and see this all worked together for good ...