Wednesday, August 10, 2005

After a very long night of worry we got to Mt. Washington this morning ready to fight for our baby girl to go back to the NICU. I will spare you the long stories, but there was just many things we did not like and Hailey was just not acting like herself. The biggest concerns were her spitting up, which she hasn't been doing since the continuous feeds, the trouble keeping her temp and the severe brady's, apneas and desats she was having where she had to be bagged and given extra oxygen. This morning she had a really bad brady and would not come up to the point they had to call an emergency and a whole group of nurses/doctors came running. In the NICU we could usually just stimulate her and she would come up. Also, she is not normally one who cries and they said she started crying uncontrollably at midnight, so bad the nurses from another room came to make sure she was o.k. By the time we started on their cases, the doctor was already in contact with the NICU because she felt the same was we did and by about 11am Hailey was back to the NICU and since then she has been great! It was like she was a whole different baby when she arrived there. She even opened her eyes and stayed awake for hours, which she hadn't done since she left. She has only had 2 brady's and 1 desat since she has been there compared to clusters of them yesterday. They checked all her counts and she is good, her lungs are also clear. They did stop her feeds to help with her reflux, since the doctor at Mt. Washington thinks that might have something to do with the destats and they put a new feeding tube in lower that goes past her stomach to help her digest better. They will start feeds again tomorrow. The only other issue we are having now is that her temp is still low, but we think its just because she has been through alot today. We all have! Also, because of everything and the doc at Mt. Washington starting her on lasix (which no one understands) Hailey has lost weight and is down to 3 lbs, 10 oz, which is quite a loss. Because we had such a bad experience the NICU said they would do what they can to keep her there until she is ready to go home! I hope and pray they can! There are so many stories from the last couple of days, but I am exhausted and need to go to sleep. Please just pray we can stay in the NICU to "feed and grow" and that the rollercoaster ride slows down soon. We are looking forward to Mom and Dad Chalifour arriving Saturday! Its nice to have family around at a time like this ...